Wednesday, 3 June 2015

Takîng Control..

Guess I'm not done with this blog after all..

Time flies, and Lotte is almost going to the next phase of the Norwegian Schooling system. after 7 years "Barneskole" (primary school) she will graduate to "ungdomsskole" (lower secondary school) where for the next three years she will work towards a more specific education.
The last couple of weeks there is activity getting to know the new school, teachers and new pupils. 
Lotte was placed in a class without one of her her best friends but after meeting her new classmates, of which some she never met, she was happy and positive about the new classmates.

Yesterday it was the parents that met, and Lottes mum (M) spend a little time explaining to other parents about Lotte's CI. Just a couple of minutes. Enough to inform, not too long to set too much focus on it. 

One of the parents spoke to M about how she met Lotte on a previous activity a couple of days ago and how Lotte had told her that she needed to speak slower because Lotte couldn't understand.
WOW... Great to hear that Lotte is taking care of herself. Making sure she understands what is being said. Making sure she is not missing some essential message.. And this towards a person she had never met... Proud parents here...

It's not often we get this kind of feedback. Obviously from teachers at school we hear how she's doing, but from other parents, unknown parents, this is rare.. Guess that's the "problem" with a child happy at school and with friends... She's fully accepted so nothing is special...

So, as said above, I'm far from done with this blog. Mew milestones are pushing buttons that require updating the blog as required I guess..

Thursday, 30 April 2015

Sorry Lotte.. :-)

At first I though she could continue on this one, but I decided I want to keep the blog as it is, and Lotte can make her own. In fact, I wasn't ready for the total overhaul of my blog by my wonderful, determined daughter..

So, Please follow Lotte's blog here and share it.

This blog will be available as a resource for us, and anyone else that want to pick our brain. :-)

Monday, 20 April 2015

Passing it on...

 I had two great experiences in Oslo. On Sunday Lotte and I had a meeting people that I connected to via the blog and then the day after a woman stopped Lotte (at the hospital/hotel) recognizing her from the blog when she looked for information about her grandson that was born deaf.
So rewarding to meet people that benefit from the blog... A great feeling.

That said, this is my last entry. Well, the last one solo..
Lotte and I decided that Lotte will continue the blog. I will pass it on tho her, and she will keep you informed about herself. But obviously there will be some supervision.. We will see how it goes.

It's a good time to do this as it also marks that she received her upgrade from the Freedom processor to the newest Nucleus 6 last Monday 13. April 2015. A nice, actually.. great, milestone in her life.
We had to wait quite a while for the upgrade. After 10 years with the Freedom we felt it was her turn, but since it's the Norwegian government that provides the CI, and there are fewer funds available, we needed to be patient. Patience is all OK, but we weren't quiet. We did send some letters requesting the upgrade with arguments why Lotte should be chosen. Reasons ranging from participating in sport to starting a new school with equipment that needs to be in place before she makes that step.

A month or so ago we got the email where we were told the good news. Now Lotte can get used to the new and better sound. Get used to the remote control and any other additional add-ones that are compatible with the N6. 

Now, a week later, all is going fine. No hiccups, no surprises... The main difference is now that Lotte is using different programs. The remote makes it so much easier that she is actually using them. Before, with the Freedom, she only used 1 program, one volume.. There was no reason for her to change, or at least it was not worth the trouble.
Or, perhaps she was too young to actually do such technical things. Not physically, but there is a maturity required to realise you can control the way you hear.
In any case, the Freedom has done an excellent job getting her where she is now, and the N6 will allow her to confidently make the next step to the next school and the next phase in her life.

I hope Lotte will start informing all the readers about her journey. And perhaps she will change the audience from parents to children. Or just get more children in here.
Time will tell.

Friday, 6 December 2013

More and better swimming

It's been a couple of months now since Lotte started to swim.
And she told us that it is much nicer than handball as "with handball I don't know where to throw the ball."...
A team sport is of course much more difficult compared to a sport where you listen and then perform. Especially when you don't get all the information due to having CI..
The trainers are great. After we explained them that not all information is understood straight away, that they have to make sure Lotte understands, they have used that information well. I was really pleased when I noticed a trainer actually managing to get the volume of all the kids down, so that even she could speak with a normal voice... Not an easy thing to do in a swimming pool with 10 kids in a group.. (And more groups in the next lane..)
So, she thrives. Loves to go. Is exhausted after her hour training. Two times a week...
And, great progress..
I hadn't been with her for a while (she wants to go alone... It's her way of owning this activity..) I was surprised to see how much progress she had made in the last month..
Here a video of Lotte after 1 hour of training.... Even though she was exhausted, she still wanted to show her swimming with this video..

Tuesday, 29 October 2013

She understands... or does she..??

Lotte is doing well. Most important, her teacher knows how to "see" Lotte. We're lucky to have her. Lots of progress. She's a little fighter..
Its difficult for outsiders to really "see" the child that has trouble hearing, because these children are masters in faking they understand the message. 
It's one of the things we have been focusing on a lot.. We tell her teachers, trainers.. "Do not think Lotte understands what you are saying. Not even when she says she does."'
We tell them to ask control questions....

Lotte does understand more and more but at the same time she's hiding some of the things she does not understand. When confronted with that, she will do a step back, smile and say "Oh yeh, I dont understand..". But not before..

It's understandable.. Lotte doesn't want to say every time she doesn't understand, and the teachers, friends, and at times us - parents - rather go on with the conversation than check if she did or did not understand.
Sometimes it doesn't harm to move on... sometimes it's important to verify that the message has gone through..

At the "Lotte-Parent-teacher" meeting the teacher told Lotte that if she doesn't understand, she needs to ask her. And if Lotte still doesn't understand, she should ask again.. It's up to her - Lotte's teacher - to make sure Lotte understands... 
Then I told Lotte that it is always OK to ask. In fact, not asking is the first mistake, and just writing down an answer without understanding the question is the second mistake..
Lotte hates making mistakes, so I hope this will be a motivating way of thinking....

Last week she had a math problem with a question like "What tracks does John have to run in order to run 6 km.?" which Lotte answered with "He has to train a lot.."
When we just point at he answer she is very quick to erase the answer... She realises it's wrong, or better said... she guessed wrong. Rather than thinking & asking when she does the exercise she just writes down the first that comes to mind.. 
Her reasoning is probably: If every question has an answer.. homework is finished...

At the end some tears due "trouble" with friends. Some frustration with friend teasing her.
She explained very well how she prefers to play 1 on 1. When there are more she see the other girls whispering and (often rightly probably) thinks its about her.
Then again.. with girls there's a lot of mental stuff going on... difficult for Lotte..
But she also shows wonderful compassion. How she includes other children when she sees someone is by him/her-self. And how she understands that you should not refuse children to play with you if they ask.. and that this is not valid just at school, but also outside school...

she's doing well... eager to learn, tell & ask in the classroom, eager to learn outside the classroom as well...

Finally a picture of Lotte in her element.. Watching/listening to movies on the iPad with her favorite friend...

Thursday, 24 October 2013

BlimE Song.. - "Join Us"

Weeks of practicing for a dance with all other schools in Norway.
Finding the son.. practicing the dance.... excellent.


And in the end it came all together to the day the whole school performed it... All over Norway.
Great initiative..

Thursday, 10 October 2013

Swimming with both CI's on...

It's not easy to get them right, but when they finally sit... they sit...
After not wanting any CI under the swimming cap (pre-summer) she agreed (after we forced her) that hearing what the trainers said was kind of handy. So.. 1 CI was accepted. Then she came up with the idea of 2 CI's.. Who are we to disagree with that...

Anyway... We found out that when we first localise where the spool needs to go above the cap, then put the spool there - under the cap, and then push the processors under the cap (on the ear is really awkward..) it works well..

So.. Bilateral Swimming....


Monday, 30 September 2013

Loud in the morning..??

This came up on a Facebook group..
 People with CI experiencing loud noise when turning on the CI in the morning, after a long period of inactivity.

Lotte never had this problem.. (See this post from 2007.. Jeezz.. has it been that long....)

But for those who have this experience.. Here is a possible explanation..
Not that I really understand... out of my league. 


 2013 Mar 27. doi: 10.1002/jbm.a.34719. [Epub ahead of print]

Dexamethasone released from cochlear implant coatings combined with a protein repellent hydrogel layer inhibits fibroblast proliferation.


Department of Otolaryngology, Hannover Medical School, 30625, Hannover, Germany.


The insertion of cochlear implants into the inner ear often causes inflammation and fibrosis inside the scala tympani and thus growth of fibrous tissue on the implant surface. This deposition leads to the loss of function in both electrical and laser-based implants. The design of this study was to realize fibroblast growth inhibition by dexamethasone (Dex) released from the base material of the implant [polydimethylsiloxane (PDMS)]. To prevent cell and protein adhesion, the PDMS was coated with a hydrogel layer [star-shaped polyethylene glycol prepolymer (sPEG)]. Drug release rates were studied over 3 months, and surface characterization was performed. It was observed that the hydrogel slightly smoothened the surface roughened by the Dex crystals. The hydrogel coating reduced and prolonged the release of the drug over several months. Unmodified, sPEG-coated, Dex-loaded, and Dex/sPEG-equipped PDMS filaments were cocultivated in vitro with fluorescent fibroblasts, analyzed by fluorescent microscopy, and quantified by cell counting. Compared to the unmodified PDMS, cell growth on all modified filaments was averagely 95% ±standard deviation (SD) less, while cell growth on the bottom of the culture dishes containing Dex-loaded filaments was reduced by 70% ±SD. Both, Dex and sPEG prevented direct cell growth on the filament surfaces, while drug delivery was maintained for the duration of several months. © 2013 Wiley Periodicals, Inc. J Biomed Mater Res Part A, 2013.
Copyright © 2013 Wiley Periodicals, Inc.

Thursday, 19 September 2013

Swimming with CI

Yesterday the third training for Lotte at the swim club.
She's still excited to go, and loved it. The club is training for racing... In time..
The previous times I went with her to see if she was comfortable (YES) and if there would be good communication between the trainers and Lotte.. And vice versa. Both times I didn't push Lotte to wear the CI under her swim-cap (hasn't been a success up to now). For me it was more important to get her settled.
This last time, last Wednesday, her mother joined us and Lotte was eager to show what she could do. I told Lotte that we would use the CI under her swim-cap and she agreed without problems.

It worked well. No problems like disconnecting for some reason... Lotte was hearing all the time.
to do the excercise where previously whe would wait to see what needed to be done.It was wonderful to see how she now talked to the trainers, where previously she wold be silent, watching eagerly to what the trainer did. How she joked with the other children, where previously she would not make contact. How she would actually go first to do the excercise where previously whe would wait to see what needed to be done.
In general, she became so much more involved... It was great to see.

Mentally, cognitively, she has grown.. In the last couple of months she has become more sulf-sufficient.. This is just another of the steps to doing things herself.. her way..
an see that Lotte notices the differences herself. How much easier it is to follow what needs to be done. How much more fun it is to hear what the other children are saying..I can see that Lotte notices the differences herself. How much easier it is to follow what needs to be done. How much more fun it is to hear what the other children are saying..

So... For next time, I will have the CI swim bags with me, but I am not sure if I am going to suggest it to Lotte... I might leave it up to her to ask me... And if she doesn't.... I'll tell her to wear it..

Update 25. Sept... She suddenly told me she wanted 2 CI on in the water...
Well... OK.. :-)

Saturday, 24 August 2013


Lotte celebrating her birthday today, with her friends... 
Think she's a happy bunny.. :-)

(Some) Milestones

  • 2013-08: Grade 6
  • 2012-08: Grade 5
  • 2011-08: Grade 4
  • 2011-03: BTE's on the ear
  • 2010-08: Grade 3
  • 2009-08: Grade 2
  • 2008-08: Mainstream School (6y. old)
  • 2006-10: All-hearing Kindergarten (4y. old)
  • 2004-11-22: CI activated (27 m. old)
  • 2004-10-04: Bi-lateral CI (26 m. old)
  • 2003-08: Deaf/HOH/CI Pre-school/"DEAF" Kindergarten (12m. old)
  • 2003-07: HA's fitted (11 m. old)
  • 2003-06: Diagnosed deaf. Start sign-language (10m. old)
  • 2002-11: Suspicion loss of hearing (4 m. old)
  • 2002-08: Born - A fierce LION
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