Takîng Control..
Guess I'm not done with this blog after all..
Newsflash... 2015-04.. Lotte will start writing her own blog.!! On http://Lotte-deaf girl.blogspot.com So.. All you kids out there... Start reading, wondering and start asking questions to her... It's now a blog for parents, children and teenagers...
Guess I'm not done with this blog after all..
November 2010... time flies and our kids grow without us noticing it.
Lotte is growing as wel. Physically and more important, mentally... More and more things become hers.
Homework is hers...

Social or academic... ? .. Where to put the focus...???
Lotte needs a lot of support in order to keep up with school-work. Reading is going well, and improves with the amount of time we spend on it. Math, adding and substracting so far, requires help as well. Fortunately, she loves doing homework. She loves reading and she's OK with being corrected - gramatically. (That said.. the sentence "I know that.!" is used often by her.. :-) )
BUT.... she loves to get the bike and just go back to school... interact with the other children that are still there. Cycling from one place to another... Being with others....
How to combine this.??
An advantage is that.. this is Norway. We have no problem with her cycling off. She has a watch, and even though she can't tell time, she understands how the dials have to be for her to be home. She's very punctual...
A disadvantage is that.. this is Norway. Days are getting shorter quickly, and cycling in the dark is a No-No for Lotte. Also dusk is too dangerous.... so this leaves little time between getting home from school, and being back inside.
So... there's the dilemma. She needs exposure to both social interaction and the academic... The social part is obvious when friends come home with her. To her it's great, because she can interact 1 on 1. Put another 7-year old in the equation, and Lotte will not be able to keep up.
A couple of days ago this happened when she had a friend over, and the two played along fine. When a third child came at the scene the interaction, or attention is not distributely equally. Lotte will fall behind in the conversation and games, and will get frustrated about that. Lotte came to us and informed us that the latter had to go. She wanted the friend to herself.
For us it's interesting to watch the difference between a 7-year old that has heard all her life, and Lotte, who has been deaf for the first 2 years.
We can see that there is still a lot to catch up.
Lotte is doing really well, but she is only slowly catching up on the 2 years lost. It seems as if she caught up 1 year since she got CI, meaning that she's mentally a year behind the rest of the class..
Realising that can hurt.... or you can look at the other side... CI helped her to catch up.
Because, when she had had signlanguage from the start and because of that had not had a delay in cognitive development, she would still not be able to interact with all the children she's interacting with right now. She would have had just a couple of other friends that would speak sign. And they would only see each other during schooltime, and sporadic visits.
Now, CI has made her in a very social girl, attending the school as her brother and sister - close to home, outgoing, determined to say what she wants to say. Sure.... she could be that deaf/Deaf as well, but not in the hearing world.
She would not have been able to communicate with her grandparents. Even thought they could have learned sign, they would have been surpassed by Lotte in no time. Now, she talks to them on the phone when in Norway, directly when in Holland.
In a way we cannot imagine how Lotte's, and for that matter, ours, and our other childrens life would have looked like had Lotte not been able to hear...
It would have been completely different. Can't say if it would have been better, or worse... but very different.
Btw... she's allowed to cycle to school for 1/2 an hour.. then homework.. :-)

.... techniques.... She has so many of them.
Lipreading is well-established, but I have a feeling there's not that much relying on it. She hears well and is more able to understand sentences... Without CI on she will use it, and will still amaze us with how well she can lipread.
Last week I saw another survival technique that we know for long, and avoid automatically..
The speech therapist asked Lotte this question "Lotte, after school, do you go home by yourself, or will daddy or mommy pick you up.?"
Alarm-bells rang with me... Too long a sentence.... Lotte wouldn't get it.. I kept quiet.. since Lotte sometimes has a way to surprise us.
Lotte looked as if she was thinking..... and then said "Yes".
The speech-therapist interpreted the answer... "So your walk home alone".... and Lotte said "Yes".
She really didn't get the question. It was too long, too complicated, so by answering "Yes" she made the adult happy, and as far as Lotte goes she got the right answer. (btw... It was the wrong answer, she never walks home alone.)
But it shows how she sometimes survives.. and people should be careful with how they ask questions...
Sort of the same in the classroom. The teachers are very good and Lotte is doing very well. They look at the children when they speak (Not to the blackboard) and there are more things that help Lotte. And the rest of the class.
One is that a message given to the class, is repeated to Lotte. To make sure she understands what's ahead.
Normally, Lotte will closely look at the other children and figure out what to do, but sometimes extra guidance is needed.
I told them that they should NOT repeat the message to Lotte personally. In no time she will ignore the first message to the classroom. After all, why bother when you know it's going to be repeated just for you.
I suggested to the teacher that she would not repeat it, but that she would ask Lotte what just had been said. That way Lotte will focus on the first message in order to make sure she can repeat what has been said..
In all, these survival skills are OK. I guess we use them as well at times...
But for Lotte it's important that she learns to listen well... So, at times we let it slip, being aware how much she does and does not understand, at times we make sure that she gets it.
But also the people around her should be aware of all of Lotte's survival skills..
Parents will identify with this...
It looks as if nothing happens, and suddenly you notice the change. Actually, you don't notice the change. You remember suddenly that something is completely changed since a while ago.
When it happened, how..... you have no clue when it happened, but it's there..We noticed it with drawings. Suddenly the pictures she made had changed. She even started copying drawings. She chose a DVD of "Mamma Mia" and started drawing the arch and the person underneath it. Amazing. New!!
But other pictures have evolved as well. More structure, copying, or redrawing the same figures.
And numbers are the thing now. She knows them, counts happily to 100, and at school they are counting money. Adding a bit, changing 10 into smaller pieces like 5's and 1's.
Then then we thought to make her remember our telephone number. 8 digits...
Actually, the cellphone of Mouse. Estimated time to make her remember, 3 days....
So, we wrote down the number.... she dialled.. well, pressed the keys, and "bliss" the mobile phone rang.. Magic.
DId it again.. Fun game. And another time.. Lotte liked
Actual time to remember it... 5 minutes.... She's good!! All this was before she went to school.... She still remembered it when she came home from school.. Photografic memory?
Next day the home number was established... We'll leave it at that for now..
All in all it demonstrates again the importance of Lotte going to school. Even though she is still behind in some social things, the learning at school is helping her with catching up.
Well, Lotte finally had her first session with the new speech therapist.

Terrible. The last update has been so long ago... as if nothing happens any more.


Well... it just goes fast.... learning to read and write, drawing has exploded.. From stars and hearts, she's now drawing towns, cars, and this morning a carwash with lots of stuff around it. Signs which way to go in, cars that have to wait. A store next door, the road, pavement. Everything she learned recently and some time ago is now integrated in new drawings.
She loves to go to school. Actually, she wants to go by herself. Seeing herself as a "big girl" she knows she can do this. We feel differently, so we have to compromise.
She is allowed to walk by herself.... with her sister.... Not a popular option for Lotte.
Sometimes she is allowed to walk the last 100 meters.. That option is popular. She starts demanding to be "released" from the car, and after a kiss, off she goes. To school alone.
She makes sure we pass her, (..driving behind her is definitely not allowed) and 2 minutes later she arrives.... she did it HER way... Have to admire the little lion.!
Some time ago, I allowed her to go by herself. Kept her sister in the house a bit longer, so she would not catch up with Lotte, but she did anyway.
Lotte was deeply offended. Turned around, and came back home to tell me that "She wanted to go to school by HERSELF.!!"
So.. told her to go asap, otherwise she would be late... and off she went..
"I want to go to the music-school"... Lotte said..
My wife wasn't sure she heard it correctly, so ask Lotte what she said..
"I want to go to the music-school" ..not so loud and clear. (We are working on talking with a soft voice..)
Many of the children in her class are signed up for this. Playing with instruments, singing. All in order to create a basis for music.
Still not sure if Lotte understood what happened in the music-class, my wife asked her "What do they do ther.?.
"Singing" Lotte replied. She is totally aware what's happening there, and wants to be part of it. (We're not really surprised.)
Of course she will go there. She loves singing and playing on her piano. She sees her brother playing guitar and her sister sings in a choir. Of course she must follow.
We never signed her up because we wanted to see how she would handle the transition from kindergarten to school.
As said before, that went without a problem. (Seems it happened overnight..) so there's no reason to keep her away from the music class. Just have to prepare the music-teacher about Lotte.)
So, another milestone. Our deaf daughter wants to make music.
And it is very touching to see her sing along with the music. It goes too fast for her most of the times, but now and again she suddenly hits the right note.
It's wonderful....
Still... lots of work to do in that area.!..
Well,
Yesterday we went to the movie "Mamma Mia" - with all the ABBA songs.
Great movie, can recommend it.
Almost all the songs were known to both of us, except two.
This one was one that we didn't knew... and while listning to it we both had to make sure not to look at each other... we forgot to bring tissues :-)
But, it's amazing how a song suddenly can come so close to your life....
Slipping Through My Fingers (ABBA - The Visitors - 1981)Schoolbag in hand, she leaves home in the early morning
Waving goodbye with an absent-minded smile
I watch her go with a surge of that well-known sadness
And I have to sit down for a while
The feeling that I'm losing her forever
And without really entering her world
I'm glad whenever I can share her laughter
That funny little girl
Slipping through my fingers all the time
I try to capture every minute
The feeling in it
Slipping through my fingers all the time
Do I really see what's in her mind
Each time I think I'm close to knowing
She keeps on growing
Slipping through my fingers all the time
Sleep in our eyes, her and me at the breakfast table
Barely awake, I let precious time go by
Then when she's gone there's that odd melancholy feeling
And a sense of guilt I can't deny
What happened to the wonderful adventures
The places I had planned for us to go
(Slipping through my fingers all the time)
Well, some of that we did but most we didn't
And why I just don't knowSlipping through my fingers all the time
I try to capture every minute
The feeling in it
Slipping through my fingers all the time
Do I really see what's in her mind
Each time I think I'm close to knowing
She keeps on growing
Slipping through my fingers all the time
Sometimes I wish that I could freeze the picture
And save it from the funny tricks of time
Slipping through my fingers
Slipping through my fingers all the time
Schoolbag in hand she leaves home in the early morning
Waving goodbye with an absent-minded smile
Lotte is doing well at school.
Still not eager to go into the classroom by herself, but a good 10-second cry to ensure she knows that we know that she misses us is enough.
Singing is not easy, as expected. Remembering the words is difficult for her. But otherwise it is going well. Also thanks to the great job the teachers are doing.
Also, no holding back from the school's side. Straight away there's homework.
Even an English song that has to be learned. (1 little, 2 little, 3 little, Indians.. ) That's too difficult at the moment, but it shows us to practice the new rhymes, songs and new words.But she loves going to school, loves coming home. She enjoys seeing her brother and sister there, and when possible playing with them.
There's a lot to do, but with the way things are going now, with the support from the school and the teachers we can see it is going to be a wonderful journey..
Today was a special day. Today you went to school, a school where you will be like all the other children, and yet, not quite..Despite the difficult start in your life you got the opportunity to live "hearing" between other hearing people.
Today was a day with many, many challenges and for us, your parents, a day with a lot of symbolism. You had to keep yourself up in a situation that you cannot control. Where you do not have the overview, where you do not understand all the information that is provided.
You were in a strange environment with new people. Until recently being in such a situation, without mummy and daddy, a situation like that would have been a problem. However, during the last summer holiday you have grown mentally with huge steps.
It goes together with understanding the world better. Exploring the world around you more freely. Being able to cope better with the situation like the one of today.
Today has put you in a situation that was difficult. A new social environment with new rules, new expectations. A situation where not everything is clear to you, and you will have to deal with it. Your intelligence helped you to deal with it... you are great in assessing a situation and anticipating it.We will not forget this morning. Again you surprised us. We think we have some idea about how exiting this must be for you. For example, before the summer holiday, visiting the school you didn't want to let go of mummies hand and we were not allowed to go further than two meters from you.
But today you showed us how much you have grown.
You were on our lap, and when the children who were starting school were called to the front to the teacher, you asked mummy if she would join you. Of course she would...
And then you were there.. proudly on the stage, smiling at us.
"Look mum - dad - I can do it myself.."
You have shown us your courage. You showed us how you can make things happen by just wanting it.
Last monday it was a big day for Lotte.
She would have her first swimming-lesson... and for us the opportunity to see how communication would be between Lotte and us and Lotte and the instructors.
We would be using sign-language when needed, but the instructors don't know sign.... Would Lotte focus on them to read their lips.??
She was exited. Swimming is very popular, and she loves to jump in the water from the starting blocks and dip under the surface.... the flotation devices on her arms keeping her head above water.....
But.. that's with daddy and her brother and sister around.....
She noticed we would not join her in the water.... Now the situation was completely new, and Lotte backed out slowly.
Then, one of the instructors actually did know a little sign, and when Lotte noticed, she allowed him to take her in the water. But not much more.... She kept climbing out and coming back to us.
It was funny when we wanted to put the coil on her head to explain to her what was going to happen. Lotte refused to have the CI on. She probably got it in her head that CI and swimming do not go together. Perhaps because she notices that no other children are using it..... She is becoming more and more aware of how she looks. (e.g. She doesn't like her hair a certain way because then" children will laugh")
Anyway....
As with other unknown situations, Lotte withdrew from the action. The same happens at birthday parties. Unknown situation, lots of action, and then she insists that one of us is close to her..)
She did not participate much in the educational part of the swimming session, but did participate the last 5 minutes of playing.... again.. only with the man that new some sign....
For us, it shows that no matter how much Lotte is prepared for a new situation, no matter how much she wants to do it, when the moment comes she needs time to adjust and get familiar with the situation.
With her new speech-therapist (when she started in the "hearing"-kindergarten in august 2006) it took 3 months... but that was 2 years ago....
Who knows how long it will take when she goes to school.
Because no matter how much she looks forward to that..... the insecurity that comes with being in an unknown situation will override that feeling!!!
(Frances M. Parsons is retired Associate Professor of History of Art and Coordinator of International Collections at Gallaudet University in Washington, DC)
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To: Sarah Wainscott, Director of Early Intervention and Preschool Programs
I came. I saw. I was conquered by the living evidence of how cochlear implant technology helps those toddlers at the River School. Words cannot describe how I felt when I finally visited the River School. I want to share this letter with anybody who wants to know about how cochlear implants benefit toddlers but are unable to get more information. The controversy about cochlear implants, especially in children, rages on with no let up. I have listened to pros and cons and met failures and successes. The most negative comment was "Those CI children at residential or day schools for the deaf could not speak!"
While sitting in waiting rooms .....Continue reading here..